Foundation
Resources
Explore trusted information and support designed to guide families through every stage of craniofacial surgery. From medical literature and treatment guides to personal stories and emotional support, these resources connect you with expert knowledge and a compassionate community. Our goal is to ensure every family feels informed, prepared, and never alone.
Medical Literature
Access reliable, easy-to-understand medical resources covering craniofacial surgery and related conditions. From cleft lip and palate care to guidance on abnormal head shapes, these materials provide families with expert knowledge to better understand treatment options, prepare for procedures, and support recovery.
Surgical Timeline
Follow a clear, step-by-step outline of what to expect before, during, and after craniofacial surgery. From pre-operative clinic visits and health checks to the day of surgery and recovery, this timeline helps families prepare, reduce uncertainty, and feel confident through each stage of care.
1–2 Weeks Before Surgery
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Meet with the craniofacial team: learn about surgery, recovery, and sign consent forms.
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Meet with anesthesia team (PASS Clinic): review health, check for airway issues, and make sure blood is ready if needed.
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Extra tests or specialist visits only if your child’s history requires it.
After Surgery
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Child wakes up in recovery. Labs are checked again.
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Most children go to a regular hospital floor with close monitoring from medical team.
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Some children may go to ICU if they had a complex repair, high blood loss, or other medical needs.
Day Before & Day of Surgery
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Nurses check your child’s health. Surgery may be delayed if they are sick (fever, cold, vomiting).
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Team meeting to review the plan and prepare for any challenges.
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Antibiotics given before surgery. Labs and blood products are prepared.
During Surgery
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Child is asleep under anesthesia.
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IV fluids given to keep circulation stable.
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Medicine may be used to reduce blood loss.
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If needed, blood transfusions are carefully given based on lab results.
Books & Stories
Explore inspiring books written by survivors and families that shine a light on the craniofacial journey. These stories offer children and parents encouragement, understanding, and a reminder that they are not alone.
by Dina Kaplan
Written by survivor and foundation founder Dina Kaplan, this book shares her personal journey through craniofacial surgery and the strength she found along the way.
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by Violet Ake
A children’s book that helps young patients and families understand what to expect during clinic visits, offering comfort and encouragement from a survivor.
